Methodology for a collaborative research

More ressources are also available in French on this page : https://www.firah.org/methodologie-pour-une-recherche-participative.html

 

The Resource Center provides methodologies for you to work collaboratively: 

Educational toolkits

The Alliance for Inclusive Education and the Disability LIB (Listen-Include-Build) Project have produced a document to help organisations make decisions about meeting disabled people's access requirements during events.
9 checklists will help stakeholders realise what needs to be, who can help and what they already have to organize an accessible conference or meeting for example.

University of Glamorgen - Joyce Howarth jhowarth@glam.ac.uk
The University of Glamorgen gives voice to disabled people in this project focusing on abuse they sometimes experience. With a new research methodology, intellectually disabled people possess the means the analyze and improve their own situations. Two methodological tools are available :
Research methodology
Research methodology accessible to people with intellectual disabilities

  • Project Pathways 1 and 2

Following Pathways 1 and 2 projects, Inclusion Europe now broadcasts four toolkits. They will help making training documents directed towards people with learning disabilities accessible. We therefore recommend them for researchers who wish to include people with intellectual disabilities in their project. These tools will allow their deeper participation in the research process as well as a better dissemination of the results.
Pathways 1 and its toolkits
Pathways 2 and its toolkits

This Guide, financed by FIRAH, is written for organizations and persons involved in CBR projects. It is also targeted at DPOs, especially those working at community and peripheral levels. Our aim is to produce a clear guide for persons working in CBR programmes. We want people without any previous experience of research to understand it. We hope that CBR workers will carry out simple emancipatory research (ER). The Guide focuses on practical rather than on theoretical aspects and gives examples from a successful ER project.
AIFO works closely with the Disability and Rehabilitation team of the World Health Organization (WHO/DAR). This guide on emancipatory research project is one of the results of a research on the impact of ten years of a cross-disability community-based rehabilitation (CBR) programme covering nine sub-districts in the Karnataka state of India (that have a final report called “Impact of CBR: Impact of Community-Based Rehabilitation programme in Mandya district Karnataka, India").
This research carried out in 2010-12 was part of the joint AIFO and WHO/DAR joint plan of work.
This guide has been created from the following research: Impact of CBR: Impact of Community-Based Rehabilitation programme in Mandya district Karnataka, India)


European Research Agendas for Disability Equality (EuRADE) project

This presentation by Lisa Waddington, professor at Maastricht University, exposes assets, drawbacks and solutions to make successful participatory research between DPOs and researchers.

This presentation by Mark Priestley, professor at the University of Leeds, exposes the goals of the EuRADE survey and the stakes of collaborative research.

This PowerPoint presentation gives examples of questions to ask to potential partners in order to participate to a collaborative research.

Academic views

EMMA STONE AND MARK PRIESTLEY Disability Research Unit, University of Leeds  (This article first appeared in the British Journal  of Sociology, 1996, Vol. 47, No. 4: 699-716).
Important methodological questions are raised by the act of researching disablement. Disability research has attracted much methodological criticism from disabled people who argue that it has taken place within an oppressive theoretical paradigm and within an oppressive set of social relations. These issues are of heightened significance for non-disabled researchers and bear many similarities to those faced by researchers investigating barriers to the social inclusion of women, Black and ‘Third World’ peoples. Such challenges have led to the development of an ‘emancipatory’ research paradigm. Six principles of emancipatory research are identified and the authors’ own research projects are critically examined within this framework. A number of contradictions are identified and an attempt made to balance the twin requirements of political action and academic rigour.

Edited by Colin Barnes and Geof Mercer
The emergence of the social model of disability offers a comprehensive critique of traditional approaches to disability. Parallel calls have been made to break the mould of disability research by adopting an 'emancipatory' approach. This book contains thirteen original contributions from leading figures and newcomers on the key issues and problems in translating disability theory into research practice. The questions addressed include: breaking the researcher-researched heirarchy; involving disabled people; ownership and control; disability research funding; measuring disability barriers; research and the survivors' movement; narrative approaches; researching sexuality, multiple oppression, abuse and violence, and researching disability in non-European contexts.

The purpose of the Center on KTDRR is to make it easier to find, understand, and use the results of research that can make a positive impact on the lives of people with disabilities. The KTDRR Center promotes "the use of high-quality disability and rehabilitation research" for NIDRR-funded researchers, developers, and KT centers. Other audiences include people with disabilities and their families, disability advocates, service providers, and policy makers, as well as administrators, educators, and employers.
In the "library" section of CKTDRR website, KTDRR staff reviewed a number of scientific articles on how to translate knowledge into action. The articles can all be uploaded from the website.
Centre on Knowledge Translation for Disability and Rehabilitation Research website
Centre on Knowledge Translation for Disability and Rehabilitation Research's library

Leeds workshop: Recommendations for bridging gaps between research and practical application
This document present 5 main recommendations in order to build bridges between research, practice, and policy.
Access to the document